parkinson disease colorado

New Interdisciplinary Clinic Opening in Boulder + More Good News

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We have a lot to celebrate this month!

Our interdisciplinary Boulder team completed the Parkinson’s Foundation Team Training. This course was designed by the Parkinson’s Foundation to increase knowledge of Parkinson’s disease. The course is also designed to encourage collaborative care. This was an intensive course that ran throughout the Spring. We look forward to enrolling more of our interdisciplinary team in the future.

Our Boulder team will begin hosting an Annual Parkinson’s Disease Interdisciplinary Clinic. This clinic is designed specifically for individuals with Parkinson’s disease. During this annual visit, patients receive a standardized set of evaluations by their movement disorders specialist, Physical Therapy, Occupational Therapy, and Speech Therapy. The goal is for people with Parkinson’s disease to go through this clinic yearly. This will assist in tracking the progression of Parkinson’s disease more accurately and integrate the perspectives of the interdisciplinary team when offering our recommendations for activity-based and pharmacological treatments. Our hope is that this input will help patients maintain their optimal function and quality of life. This clinic is also offered at our Anschutz Medical Campus.

Congratulations to Michelle Fullard, MD and Isabelle Buard, PhD for receiving the University of Colorado Department of Neurology’s Intradepartmental Grant. This award has been offered since early 2016 to assistant and associate professors. This grant is designed to give the junior faculty a jumpstart on new research years and allows for protected time to prepare a grant application, write a peer-reviewed journal article, develop collaborations and/or perform any other research task that may otherwise be challenging because of time.

Dr. Buard’s research is “Investigating cortical sleep patterns disruption after traumatic brain injury under the mentorship of Dr. Benzi Kluger and Dr. Jeff Hebert. Dr. Fullard will conduct Examining gender differences in therapy preferences and risk tolerance in Parkinson disease” under the mentorship of Dr. Maureen Leehey. Dr. Fullard recently completed an interview with Davis Phinney Foundation about “Removing Barriers to Deep Brain Stimulation for Women with Parkinson’s.” You can watch the full interview on YouTube on Davis Phinney Foundation’s channel.

Upcoming Events for Parkinson Disease

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upcoming events for parkinson disease

The faculty and staff of the Movement Disorders Center has moved online for many things. Many of our upcoming events for Parkinson disease community have also been moved online. We miss meeting in person but have been able to continue our collaborations and work.

One of the great things we have found through these tough times is the ability to connect with other groups and organizations. We have been working virtually with groups throughout Colorado and throughout the country. Our community has access to more information and more resources.

Upcoming Events for Parkinson Disease | Movement Disorders Center

Deep Brain Stimulation for Parkinson Disease and Essential Tremor

Dr. Drew Kern is hosting a webinar about Deep Brain Stimulation (DBS) for Essential Tremor and Parkinson disease. The webinar will be Thursday, May 21, 2020 at 10:00 AM MT.

Dr. Kern will talk about the DBS process, different products available, and the benefits and risks of surgery.

The webinar is free, but please register here before. After registering, you will get a confirmation email with instructions to join the webinar.

Upcoming Events for Parkinson Disease | Parkinson’s Foundation (PF)

Care Partner Summit

The Parkinson Foundation summit will take place virtually on Saturday, May 16th from 12:00 pm- 3:30 pm ET (10:00 am – 1:30 pm). This year’s Summit will focus on the unique journey of a care partner, with our theme: Planning for the Unpredictable Path of Parkinson’s Caregiving.

A timely topic during the COVID-19 pandemic, the speakers and care partners are ready to share their insight and encouragement to those caring for someone living with Parkinson’s disease (PD). We recognize the hard work that goes into caregiving and we want to create this space for them to share their life lessons, learn from each other and grow in their self-care skills.

The summit will be online only, and individuals may register for English or Spanish. The Care Partner Summit will be focused on the following topics:

  • Cognitive Changes
  • Mental Health
  • Self-Care
  • Practical Planning

PD Health @ Home

During this challenging and often isolating time of social distancing, now more than ever PF recognizes the importance for people within the Parkinson’s community to stay active, connect with each other, and receive support no matter their physical location.

Visit Parkinson.org/PDHealth for a full list of events. Participants can register for virtual community engagement events of interest and put them on their calendars.  You can join PF for these upcoming events:

Mindfulness Mondays
Start your week with calmness, as you take part in guided relaxation techniques to help boost brain power and reduce stress. Sign up now. View past events.

Expert Briefings Tuesdays
Taking place in home offices across the nation, the PF will host webinars about the PD topics that matter most to you. Sign up now. View past events.

Wellness Wednesdays
Join us at noon for a Facebook Live event or a PD-related educational video that will highlight PD awareness, research, or treatments. Follow us on Facebook now. View past events.

Take Time Thursdays
Choose from several virtual events taking place across local chapters. Engage with a PD expert on the topics that matter most to you ― from exercise, nutrition, stress management, and more. Sign up now. View past events.

Fitness Fridays
This PD-tailored 10-part fitness series will feature a new focus every week, from balance to coordination, posture, and more. Watch each 12-minute session from home as many times as you wish. Watch now!

Consult with your healthcare team before beginning any new physical activity, including online exercise classes and programs. The Parkinson’s Foundation is in no way liable or responsible for injuries sustained from online classes.

PD Health @ Home will be held from April 6 to June 11. Find all PD Health @ Home programs here. Register for the events that interest you and put them on your calendar. New to virtual events? Read our guide here.

Resources That are Always Available
The Parkinson’s Foundation is dedicated to empowering the PD community through education. Below are additional resources always available to you:

  • PD Conversations
  • Parkinson’s Today Blog
  • Bilingual Helpline 1-800-4PD-INFO (473-4636) Weekdays 9 a.m. to 8 p.m. ET.
  • Follow us on Facebook
  • Substantial Matters Podcast
  • Expert Briefing Webinars

Stay healthy and well!

MDC Designated a Parkinson Disease Center of Excellence

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The faculty and staff at the University of Colorado Movement Disorders Center (MDC) are excited to announce we have earned the designation of Parkinson’s Foundation Center of Excellence. Dr. Lauren Seeberger and Dr. Maureen Leehey will serve as co-directors.

The MD is now one of 34 center in the United States and one of 48 sites internationally. 

MDC showcased its commitment to the criteria of a Parkinson’s Foundation Center of Excellence throughout the application process. These criteria include practicing at the highest level of evidence-based patient care, conducting relecant research that serves patient priorities, leadership in professional training, and educating patients and the community through outreach programs. 

The team at MDC is made up of Movement Disorders-trained neurologists, neuro-palliative neurologists, neuro-behavioral neurologists, neuro-ophthalmologists, neurosurgeons, rehabilitative medicine specialists, speech language therapists, physical therapists, occupational therapists, neuro-psychiatrists, and many others, including the invaluable Parkinson disease organizations throughout our community. This team has a deep understanding of all aspects of Parkinson disease and its therapies. 

“We learned so much about our own program going through the rigorous process to receive designation as a Parkinson’s Foundation Center of Excellence,” said Dr. Seeberger.

 

Receiving this designation is an incredible honor and we look forward to deepening our relationships with those in our PD community. In doing so, we also look forward to elevating standards of care for people with PD and those who care for them. 

“The team at the University of Colorado is thrilled to be part of a larger network of high-performing sites that allow us to share what we do well and create opportunities to raise the bar by incorporating successful programs from other sites,” said Dr. Leehey.

Our Center is Here to Help

In 2018, the Movement Disorders Center served 3,281 people with Parkinsonism, conducted 39 PD studies involving nearly 300 patients, and delivered 78 talks to professionals and the community. 

The MDC offers a Newly Diagnosed Educational Visit shortly after diagnosis. During this visit, patients are given one-on-one education on the diagnosis and treatment options for Parkinson disease. This time is dedicated to answering all questions and providing extra support and encouragement. 

The full press release can be read on the Parkinson’s Foundation website.